The last two days have been wild, and we are feeling so grateful to be where we are right now. Joey was extubated early this morning without any issue, a huge change from just under a week ago. He is still on oxygen, just a regular nasal cannula. The nurse is trying to locate one capable of lower flow to try to wean him off more. If all continues as is, he’ll move out of CICU tomorrow.
We are in a private room, with dim lights and music playing around the clock. We keep the glass doors closed for most of the day. We have learned that creating our own “bubble” here is necessary for peace of mind – or survivors guilt starts to settle in. There are many babies here that have not moved since we arrived. Yesterday there were two emergency interventions that happened here that required, what looked like, surgeons operating. One of our first days in the CICU we saw a large group of people in the room next to us, then heard a man moaning, music playing, and then the room was completely empty – no baby. I was sad. The preciousness of our situation became very evident.
While many of the other patients are struggling, there are many who are thriving like Joey. Our neighbor received a heart transplant the same day Joey had his heart surgery. He was extubated yesterday and is out of the CICU. A friggin HEART transplant! How does that happen?!?!? He was on the table for less time than Joseph. I’m still trying to wrap my head around what is happening here. It is amazing, crazy, unbelievably cool.
The biggest thing that happened today was this:
48 hours after open heart surgery, they asked if I would try to feed him. There is nothing, nothing, NOTHING like this. I am HAPPY.
So, we are still floating here a bit – and are looking forward to seeing MALCOLM THIS WEEKEND!!!!!!!!!! I may just eat him up.